Category: Uncategorized

Farewell My Friends

Dearest Liver,

The last couple of weeks have been really hard on me. I had my first scan from the new clinical trial I’m on, an immunotherapy drug, and it didn’t go so well. I knew it was a likely outcome since this drug is known to take a while to work, but it still sent me into a tailspin.

Then I found out the next day that my beloved port-a-cath needed to be removed because the hole in the skin that had been ignored as just a spot of thin skin for 9 months was actually a hole where my port was exposed. I has surgery the following day to remove it, have to wait for it to heal completely, and then will have surgery to put in my third port. Read more

Chemo Mouth

Dearest Liver,

Sorry for the 2 post meltdown and then radio silence. I lucked out this time and my doc found me a new trial to go on. I’m taking 2 oral drugs, Tamoxifen (again) and Vorinostat, and I get an infusion of an immunotherapy drug every 3 weeks.

So far, so good. I actually feel fairly normal on this drug and there are only minor side effects. My platelets are low so my legs look like I’ve been in some sort of crazy fight and there’s maybe a little fatigue, but it’s hard to tell with the number of hours I’ve been working recently.

The worst side effect from these drugs so far is my messed up taste buds or “Chemo Motongue_maputh” as some people call it. A few weeks ago I was having the problem that everything I ate tasted like metal and now everything tastes like salt. EVERYTHING! Sweet things are actually sort of worse than foods that should have salt in them. It’s to the point that I don’t even want to eat b/c everything tastes so nasty, but I know that I have to. Read more

Bucket List

Dearest Liver,

Clearly my meltdown tonight is driving me to write two posts. This one I intend to update and hopefully check somethings off of. Maybe I’ll even make it a new section.

I’ve never officially had a bucket list, but why not start one right? I’m not really sure how to break this down, so let me know if I should organize it better. None of these are in any order of importance… Read more

how do you face it?

Dearest Liver,

Sorry that I’ve been away so long. For a while I was feeling well and I didn’t want to take time away from that to sit down and write. I was having fun with my friends, dancing whenever possible, and finally traveling and doing things I wanted to do. It was amazing, and even though I KNEW that it wasn’t going to last, I couldn’t comprehend how horrible it was going to feel when that was pulled away from me again.

I tried to prep myself for it, thinking that if I lived it up and enjoyed all of the moments I had, when I was torn down back into my fucked up reality of metastatic cancer it wouldn’t be so bad. Like somehow I would be able to weather the storm of the next rough patch by reliving the nice parts of my chemo break in my head. Read more

Why do I only freak out at night?

Dearest Liver,

I can’t figure out if this is just me, or if others are like this, but I feel like I always have my cancer freak outs at night. The annoying time when it’s too late to call my friends or my dad and I’m stuck thinking the absolute worst thoughts until the morning.

Tonight I was lying in bed trying to fall asleep (a task thay has been harder and harder recently) and I felt a weird pain in my sternum. As I touched the area I felt a bump that I am now convinced is a new met. It might be just the way that area has always felt, or maybe I’m just noticing it b/c I am having a hard time keeping on weight and I can feel my bones more.  Read more

I want to do all the things!

Dearest Liver,

I’m so sorry for the break in blogging. It’s a little funny that my last post on here was about being a newly enthusiastic blogger and then I stopped blogging for a while. I started a few posts, but never quite finished them.

I have been taking the new drugs for a few months now and I started to feel like a real person again in April. It is amazing and I found myself wanting to do all the things that people asked me to do. Not to say that I was going super crazy, but after feeling sick non-stop for 6 months, I was all about dinner with friends and birthday celebrations and anything else that sounded fun. I even went to Mexico and it was amazing!! Read more

I never thought I would be a blogger 

Dearest Liver,

When I was first diagnosed with cancer in 2005 everyone told me that I should make a blog. I was in a much different head space the first time around and didn’t see how it would help me. Then I was diagnosed with metastatic cancer 2 years ago and everything changed. I was struggling with a way to cope and decided to give this a try. It seemed like a good way to vent my thoughts and spare my family and friends from having to talk about my cancer all of the time. Read more

No more chemo for a bit!

Dearest Liver,

My latest scan showed that you are still responding to the chemo and shrinking, so after a few tears, a few meltdown emails, and some begging on my part Dr. Rugo gave me a bit of a break. My dad called it a “drug holiday” at first, which I have to admit sounds way more fun than just NOT taking drugs, but it was nice to let my body recover for a bit.

Now I have been switched over to a hormone therapy drug that consists of two HUGE shots in the butt. The shots are supposed to be monthly, but I have to get them every 2 weeks for the first 3 injections. Then they start being once a month. Tomorrow is my second shot, so I’ve made it through the first 2 weeks pretty much major side effect free. Read more

The woes of chronic illness

Dearest Liver,

Chronic illness is the thing that I struggle with the most in my current situation. It’s the thing that makes me feel alone and sad and tends to trigger most of my recent meltdowns. It’s also something no one will ever fully understand unless they have the misfortune of having it, so I thought I could try and explain it to you.

When I was first diagnosed with metastatic cancer, I felt lucky to have such an amazing support system of family and friends. It was really hard to process the idea of having incurable cancer. I was just about to turn 30 and the thought of being “that cancer girl” for the rest of my life horrified me. My friends made jokes with me and told me that I was stupid for thinking that no one would ever love me or want to be with me because I have cancer. They were a shoulder to cry on and would take me out drinking and dancing whenever I needed a break from reality. Read more

Break

Dearest Liver,

I was given a small break from my chemo last week. Despite my two neupogen shots, my blood counts were too low for chemo. I also suspect that the addition of the neuropathy helped my case for a break. I have been feeling like I never fully bounce back lately as well. The exhaustion is overwhelming. Granted I probably don’t sleep enough hours, but having to be at work at 7:30 am doesn’t make it easy.

Instead of chemo I had my 3 cycle CT and found out that the tumor in you was a little smaller again! Not the 50% decrease that I had the last time, but still, smaller is smaller! Now I’m waiting to see what my doc wants to do next time. I’m being tested for a new study and there are some other options on the table. I have a feeling I’ll be back on chemo for a little bit next week, but at least I got a tiny break. Read more